Noah has another sinus infection

I’m gonna call your office in the morning and try to bring him in to see you tomorrow after school (or Dr. Shurin or Dr. Diamond if you’re busy 🙂

I’ll also make another appointment for Noah with Dr. Kachru, but it usually takes a few months…

Noah’s been good about taking his daily antibiotics the last few weeks, it might just not be strong enough for him anymore…

He probably needs another Zpack for this infection, then we can start doubling his daily antibiotics from once a day to twice a day until we get in to see Dr. Kachru.

(I also got a referral from Dr. Wong to go and see Dr. Butte, so I’m make that appointment too.)

High school was when I started to have serious problems…I wish we could start him on low dose IVIg. Even 12g/month might help him a little bit. This is the second infection he’s had this school year so far…reminds me of when he was little and not on any antibiotics, he’d get sick, we’d treat him, then a couple of weeks later he’d get sick again…

I hope you’re doing well 🙂

Warmly,
Tara

(Noah really has to go to school tomorrow, he has a big group project to present, so as long as he can make it he really needs to go. These infections are kind of slow-ish developing (usually), so he should be okay until we get him into your office 🙂

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David Noah waiting for an X-ray

We’re working on his science fair project while we sit in the waiting room at X-ray at the Urgent Care to check on his stomach…such is our lives…

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What do you think of this white spot near my port?

What do you think of this white spot near my port? I’ve noticed it there before. It doesn’t hurt. I’m not sure when I got it, but it’s been there at least a few weeks. (I just want to make sure it’s not an infection.)

(The red is just tape allergy…I have a slight allergy to the tape. It doesn’t bother me, so I don’t really care about it 🙂

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“But I read online that antibiotics can hurt your stomach”

I just got a taste of how doctors feel when someone who knows very little about medicine makes a really stupid medical decision out of ignorance–

I feel so bad for this man–he’s made it so much worse for himself–

I was just in an Uber, and the driver was complaining about a pain in his mouth. “It really hurts, its hot, red and swollen.”

Then he added–and proudly– “The dentist tried to give me a prescription for antibiotics, but I read online that those things kill all the good bacteria in your stomach, and I didn’t want to do that to myself.”

When did you get this prescription?? Two weeks ago. And now it’s gotten red and hot in the last 24 hours??

I was so flabbergasted, I cut straight to the point,

“The infection in your mouth is much more likely to kill you, then taking antibiotics and killing off the ‘good bacteria’ in your stomach. You’re right–antibiotics do kill off good bacteria–but there’s a very simple solution, eat yogurt–

But this infection? In your mouth? Will kill you if you don’t treat it immediately.”

The driver looks into his rear mirror at me,

“Wow, golly gee ma’am, I appreciate your honestly. It sounds like you know what you’re talking about.”

“I’m not a doctor, but you need to see one asap. After you drop me off, go straight to the ER, explain to them the pain has gotten worse in the last 24 hours, and now it’s hot and red.”

“Oh, okay.”

“I mean it. Go straight to the ER.”

Now my wheels were spinning…blood work, X-ray, maybe even another imaging study, but I wasn’t sure what would be best for his situation so I didn’t say which one. I just told him he needed bloodwork and an imaging study, to make sure the infection hadn’t move into the bone.

Silence between us…I finally broke it,

“Normally I’m really chatty and friendly in the car, but honestly all my mind can think about is how much you need to get to a doctor ASAP. I can’t talk about anything superficial and mindless. You need to see a doctor.”

And with that, he dropped me off, thanking me–

I gave him my number. I told him to text me and let me know how he was going in the ER. I hope he’s gonna be okay.

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Dripping my medicine under the Gremlin

I can’t even find words to describe how I’m feeling…

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Sorting through the bacteria DNA in my bloodstream

Dr. P,

I don’t know what the Karius results show, but we know for sure I cultured positive for Entercoccus and Corney Bacterium in November 2005 (those records at St. Joe’s hospital),

so if the list of bacterial DNA does *not* show those two strains,

then we know the results are all bacteria since then at least–

I feel so ill right now, it wouldn’t surprise me if I did have lots of things in my blood stream….I haven’t felt this sick since 2005 or spring 2011…

Thanks again for everything,

Warmly,
Tara

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Karius Blood Test–super cool :)

Syndi,

This is the blood test I was telling you about today–it can detect the DNA of lots of bad things floating around in your bloodstream. I can’t wait to get my results 🤢🤓👍.

https://www.kariusdx.com/products/Digital-Culture

It will probably be many years before they offer anything like this in Canada, but it’s super exciting for infectious ideas medicine, especially for people like me 🙂

Hang in there…your pain will subside. Love you lots 🙂

Tara 🙂

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