NBC News: The doctor is out? Why physicians are leaving their practices to pursue other careers

Everyone needs to take a stand and get private insurance companies out of medicine. They are destroying how medicine should be practiced, and it’s leading to more and more doctors dropping out.

The Canadian healthcare system isn’t perfect, but the one thing I’ve noticed is that doctors are *much* happier in Canada—they get paid regularly, all their patients get what they need, and they don’t have to deal with the magnitude of bureaucracy that doctors have to deal with in the United States. If a Canadian doctor thinks their patient needs an MRI? All they do is write an order and the patient gets it.

The doctor is out? Why physicians are leaving their practices to pursue other careers
NBC News

“After 20 years, I quit medicine and none of my colleagues were surprised. In fact, they all said they wish they could do the same,” said one doctor. Read the full story

Shared from Apple News

Posted in Uncategorized | Leave a comment

Email contacts for Cincinnati Immunology lab

I spoke with Cincinnati Immunology lab, and they said you’re welcome to email one of their doctors and they would recommend which tests to order through them.

She said either doctor would be good to contact, that they would be helpful:

Rebecca.marsh

Jack.blessing

Dear Dr. Marsh and Dr. Blessing,

I have a 15 year old patient, David Noah Kittle-Pals who presents with reoccurring upper respiratory and skin infections, without a fever or elevated white cell blood count, who was put on prophylactic antibiotics but has had 5+ breakthrough infections over the past year.

I would love to hear your recommendations regarding further testing at your facility which might provide insight into this case.

We recently discovered David had an abnormal result to his CD 19 level, and we believe this may be a clue to the root of his deficiency.

David’s mother, Tara Kittle, has an extensive history of infections, polyps, and autoimmune disorders dating back to childhood, including a positive blood culture (corney bacterium and endercococcus) with a wcb of 6.7 and absence of fever.

There’s also an extended family history of David’s maternal grandfather, great-grandfather, and great-great grandmother of deaths from cancer and long history of infections. (Throat, colon and leukemia).

Please advise.

Warmly,

Dr. Lauren Crosby

Posted in Uncategorized | Leave a comment

Maybe you or Dr. Kachru can order the CD 19 test into UCLA?

I don’t want to wait to see Butte…maybe you can ask her to do it, under the guise of ‘then Noah will have the results to discuss when he sees Butte?’

I’ve been really sick the past few months (even worse than normal for me, I have a new brain lesion, etc), so I’d rather not wait because getting up and going back and forth all the time to doctors isn’t easy. It’d be much better to do the tests, then go over the results with people…it saves a trip to the office…

(Especially Butte — to talk about what? What more does he really need to hear? If he truly cared about Noah’s case he would have reached out to you. They have records, they have the referral to Dr. Wong in the UCLA system, Dr. Kachru is in the UCLA system, it’s all there. Clearly he just has cases he feels are more important. I’m not upset, I’m just practical about these things, if a doctor is resistant to help I just have to move on (in order to survive 🙂

Maybe if we order these CD 19/CD21 tests, and the results show insight, then he’ll probably help because our case will be more interesting to him. He just doesn’t want to spend the time thinking about what could possibly be the problem (since the possibilities are endless—they don’t even entirely understand the immune yet—), so he probably prefers a positive result to something, *then* wants to be involved in the discussion for how to treat it (if it can be treated).

It’s the thinking that’s so time consuming, and not of interest to most doctors…then you combine how healthy we look (which makes these specialists feel off the hook when preliminary tests come back ‘normal’—they would never blow off someone who actually looked sick—),

but doctors on the forefront of our case know it’s serious and can’t shake it, but sometimes these specialists feel they know better, so they also dismiss what their own colleagues are trying to tell them 😢.

Let’s figure out how to order these CD19/20/21 tests…

If UCLA won’t help, maybe if you call Cincinnati and talk with them, they might help? Maybe we should send blood to them?

Cincinnati has a new director of their Immunology lab—maybe if you just start fresh and ask her what wouid be good tests to run? She normally hears from immunologists, but if you’re passionate and concerned, I’m sure she’ll give you some ideas too—

https://www.cincinnatichildrens.org/service/i/immune-deficiency/diagnostic-lab

Posted in Uncategorized | Leave a comment

CD21 and CD19 deficiency: Two defects in the same complex leading to different disease modalities – ScienceDirect

Some things in this article are ringing similar or our case — particularly the part about normal T, B and NK levels, normal IgM levels, but then all of these problems with infections —

(I admit I can probably only understand about 20% of it though…just enough to put some pieces together—)

I think this article is saying disease progression is different in different patients — Noah started getting sick when he was 2 years old (after he left the house and started preschool), and I’ve been getting worse and worse and I’ve gotten older—

Could this disorder also explain why IVIg makes me feel better? IVIg has made me feel better, from the moment I started it…if it wasn’t for this salivary gland removal infection, overall I was doing better than I had for years on ivig—

Can we start Noah on IVIg (even just a low dose if we have to pay cash for it?) Ask Dr. Kachru? IVIg will help Noah feel better, and it will help him gain some weight too—

I’m really impressed you stumbled up on this issue…and I’m very grateful. Of all the ‘fancy’ specialists Noah and I have been too, I love that you found one of the best clues to date 😍. Noah and I look so healthy, I can see most of these specialists blowing us off (not the NIH, but almost everyone else), and I’m always snapping at them “you should talk with Noah’s doctor or talk directly with my doctors directly — they know something unusual is going, they’re the ones on the front lines helping us stay alive, and keeping us alive is a constant, never ending job—nothing about this is normal —ask them—“

It sounds like there’s a lot of variations in severity of disease with this CD 19 problem, and Noah fits right on the potential spectrum—not the most severe case, but definitely bad enough to cause problems all of the time—

Thank you very much. I’m almost positive this is it. It even effects the complement system, which I’ve suspected was somewhat involved somehow—

Now let’s figure out how to test it 😍👍. I’ll start researching around for labs who can test this…

https://www.sciencedirect.com/science/article/pii/S1521661615300279

Posted in Uncategorized | Leave a comment

Deficiency in Memory CD 19 cells —can we investigate this further?

This deficiency is very interesting, and seems to fit within part of the story of Noah’s health — for example, with the pneumococcal vaccine, he’ll mount a response, but then it depletes faster than normal, so he’s already had a lot of extra ‘booster’ shots — it’s like his body forgets faster than it should. I’m not sure if this result can explain is low wcb or his slightly below normal other results (which are definitely flags of something—)

But I hope there’s a way we can explore this memory cell issue…I hope we can investigate this further…

Posted in Uncategorized | Leave a comment

Study Finds Genetic Links for Vulnerability to Common Infectious Diseases

Is there any way to test for these immune disorders mentioned in this article? My genes ‘contributed’ to the research for this article, the company told me. I’ve submitted my DNA and answered over 1500 23 and Me health questions, so I’ve actually been ‘included’ in a bunch of studies, but they won’t say exactly how I contributed to these studies…I wonder if there’s a way to find out how?

https://blog.23andme.com/23andMe-research/study-finds-genetic-links-vulnerability-common-infectious-diseases/

Posted in Uncategorized | Leave a comment

9 August, 2018 09:33

http://happy.redskyfx.com

Rita Kachru

Posted in Uncategorized | Leave a comment