Cali’s expression says it all

And this is how I was scratched up a zillion times πŸ€ͺπŸ₯°πŸ’₯

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One of the more painful ports I’ve had inserted πŸ₯²

This port in my left arm is definitely the ugliest…when my nurse took out the first needle last night, it bled and bled from the hole, as if there was a big pocket of blood around the port and now it was able to spill out….I’ve never had that happen before πŸ€”.

Instead of putting in a new needle right away, he’s going to give it a day then put in a new needle tonight.

The good news is that my really bad cough is almost gone, so the IV antibiotics are definitely working. πŸŽ‰πŸ’₯πŸ’ƒπŸ»

I just don’t want it to clot up, that’s my biggest concern…I need this little bugger to work πŸ₯°πŸ™βœ…

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“These tubes are NOT play toys” πŸ€ͺ

It’s difficult trying to explain to my kitten that these tubes coming out of my arm are NOT play toys. πŸ₯°

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Here we go! Power port #7 (or #8? πŸ€”)

I’m getting my new Power Port today, I love these Ports. I wish I could send a thank you card to the person who invented them ❀️⚑️

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If I could write a poem about an IV stick, it would be about this one β€οΈ

If I could write a poem about an IV stick, it would be about this one for sure πŸ₯°πŸ’―

This IV stick in my right forefinger was the **best** IV stick I’ve ever had in 16 years of being stuck (thousands of times).

The stick went in last Saturday night (after the John Williams performance at the Hollywood Bowl, first time Noah and I did anything in years),

and a week later tonight the stick was *still* good — in fact, the line was even leaking back blood earlier today, which is the sign of a *really* good line cuz it’s open —

But I had to take it out cuz it was starting to itch a little…if I had to, the dressing could have come off, cleaned my finger, then put clean dressing over the same stick,

but thankfully I’m scheduled to get my new power port put back in on Monday morning so I’ll be okay for a day and a half πŸ₯°β€οΈ.

And even better news?

The cough that I’ve had for **months** — the cough that was so bad I was spontaneously vomiting and ripping muscles all throughout my chest and stomach area —

That cough is **finally** subsiding on the IV Invanz!! Wow wow wow yea!

I should probably do another lung CT in a couple of weeks to see if my lungs look like they’re improving on imaging too…I wonder how long this is gonna take…

But for now,

I’m glad the cough is subsiding. It’s gonna be a long journey in front of me back on IV meds, so I’m looking forward to getting my power port back in on Monday πŸ™‚

(Noah kept saying he thought my cough was infection based, and it’s definitely starting to look like he’s right…im so relieved it’s going away, I was getting really worried it might have been the Big C…)

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He got it in the knuckle of my pointy finger but it worked good

Yea –> He got it in the knuckle of my pointy finger and it worked good. Got the medicine in, it’s definitely helping.

Trying to preserve the stick for tomorrow too, in case they can’t get me in for a port until Friday or Saturday.

Damn cat scratches…Should know better. Noah is right, gotta play with the kitty at a distance…

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I got through the swallowing test!

I got through the swallowing tests okay — it was kinda cool watching the barium marshmallow puddling slide down my throat on the xray. Kinda spooky watching a skeleton in action πŸ€ͺ.

Since my coughing fits start 30-60 min *after* I eat (or even drink) i think it’s more likely my diaphragm or my lungs (expanding pressure from my stomach irritating one of them),

but doing these tests today it’s a matter of being thorough and eliminating the various possibilities.

The speech pathologist who was administering the test was very friendly and had an engagement ring on, I congratulated her (wedding on Nov 14! πŸ”” )

it was exciting to feel her hope and enthusiasm for the future..:I’ve kind of forgotten what that was like, to be in a moment in time and so hopeful and passionate about the pathway in front of you….it was nice to feel the future in her eyes, I hope it works out for her ❀️

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Today I have my least favorite test — the swallowing imaging kind :(

Today is the first of a bunch of tests to figure out why I have a chronic cough and my lung capacity is so low (49%, which is someone 84+ years old…),

so first on the list I’m doing some X-rays where I have to drink something yuccy then get images…

Hate these swallowing ones…I’m not sure I’ve ever had one of these swallowing tests ever show anything interesting either πŸ€”.

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I’ve been reading about reduced lung capacity –> I don’t feel like I have it πŸ€”

So
Weird I don’t feel I have it…

I’m drunk off my ass but seriously I don’t think i have it

Of course dying of lung cancer would be so ducking poetic

I’m ok with that

I’m seriously ready to go

Noah made it to 18

That was my wish in the fall
Of 2005

That Noah would make
It to 18

He made it

I’m okay now

It’s okay if it’s time for me to go

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Noah was so funny after Dr. Artal’s appointment today :)

Noah and I left Dr. Artal’s office with a list of things for me to do to investigate my cough — 3 different tests — and during the appointment I felt Dr. Artal was concerned about both my significantly reduced lung capacity and the extent of my cough, and now he’s chewing on it.

Exam orders in hand, Noah and I were walking down the hall towards the elevators,

and Noah kept shifting and shrugging and hoffing.

“What is it Noah?”

He lets out a loud groan, “that appointment was sooooo disappointing!! He barely spent any time with us and we didn’t even discuss all of the various causes of your cough or the different things it could be.

Then Noah really frowns,

“And I reeeeeally think you need jump straight to the bronscopy, given your history of negative imaging studies when you have a problem — you need to just go straight to the broncocospy.”

I busted out laughing as I pressed the elevator button,

“Noah, first of all, that was a great doctor’s appointment.”

“But it was so short!!”

“The doctor heard all of my concerns, processed it, and came up with a plan of action — then wants to see me again when we have the results of these exams before deciding the next step.”

Noah was not having it, “But I reeeeeally think you need the bronscopy!!”

I shook my head “Noah –> a bronscopy is pretty serious business, it’s general anastethia, and they poke a camera down your lungs. It’s not the first step in the process”.

“But it’s the step you need.”

We get into the (thankfully empty) elevator,

“Noah, doctors have a process…Uncle Bobby used to remind me when I used to get frustrated too….doctors have a process, a way they like to do things, it’s the way they’ve been trained, it’s what makes sense to them. So even if you’re totally sure what you need — and even if you’re completely confident that’s the conclusion they’re going to come to — you need to follow their process because it helps them process your case and it helps them think about you in a way that makes sense to them.”

[Once a clinical pattern has been established in a patient then of course we can skip a lot of these steps, but when a patient is new to the doctor or the symptoms are entirely new, you have to respect and go through their process.]

Noah nods…considers all of this for moment…

Then let’s out a big sigh,

“I guess I was just hoping we could discuss your cough more in depth…I wanted to learn more about the lungs to try and better understand what’s going on…”

I laughed again,

“Noah!! You have been so spoiled by Dr. Sherman and Dr. Pitchon, who take a lot of time explaining things to you! Most doctors appointment are like this, or frankly even worse — this appointment may have been short, but it was very efficient and we got through everything we needed to get through –”

He really looked defeated — so I tried to make him feel better,

“The thinking part of the cough diagnosis will probably happen at the next appointment, when the test results are in…but think of this way, I definitely feel Dr Artal is considering the severity of my cough, and now he just wants these tests done to help him process what’s going on…”

Noah still looked sad…but but but…neeeed mooore information…

(You just need to go to medical school my love 😍.)

And with that, we brought up a couple of smoothies to Dr. Sherman’s office for him and his secretariesπŸ₯°β€οΈ

Thank you πŸ™‚

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