Wow, ouch…I coughed so hard…

This is kind of embarrassing, but I coughed so hard I vomited *and* pissed myself at the same time — it was like my entire body had a momentary super intense spasm — I pulled another muscle in my stomach area —

This cough is really weird…I gotta start my IV antibiotics again…I’m getting so low on my immunoglobulin, that’s probably the root of most of my problems…I’m going to figure out going back to Canada soon…

Posted in Uncategorized | Leave a comment

Noah just did a bunch of bloodwork :)

We should get the results back early next week, we’ll do his bloodwork every week while he’s in recovery, to make sure we don’t shock his system too much. 🙂

Posted in Uncategorized | Leave a comment

Former NFL QB Jake Plummer is now a mushroom farm…

We should look into this Noah — there might be something in mushrooms that could hell you feel better and help you with your weight 🤔

https://www.yahoo.com/sports/former-nfl-qb-jake-plummer-is-now-a-mushroom-farmer-in-colorado-160030243.html

Posted in Uncategorized | Leave a comment

CNN: No antibiotics worked, so this woman turned to a natural enemy of bacteria to save her husband’s life

Wow — this is fascinating — I wonder if there’s a way to purify this process and have it in stock in major hospitals for emergencies just like this one 🤔

No antibiotics worked, so this woman turned to a natural enemy of bacteria to save her husband’s life

Read in CNN: https://apple.news/AlPD5ykQDQZK4spMA8eXb1A

Shared from Apple News

Posted in Uncategorized | Leave a comment

Noah’s final ‘well check’ at Pediatrician’s office

Noah had his last well check today, it’s basically a good-bye meeting…wrapping up one leg of Noah’s healthcare journey in preparation for the next leg…

Noah weighs 98 pounds without any clothes on…98 pounds…1 pound *less* than the last time he was there a couple of years ago…

Pediatrician reiterated Noah looks malnourished and that he needs a comprehensive strategy to overcome it…she agreed college isn’t an option until his health gets stabilized…she likes that Cathy is coming to help, clearly Noah needs a lot of support right now…

And…if that wasn’t enough, Noah has a fungal infection all over his back, probably related to his malnourish/immune deficiency. we have to get a cream to put on it twice a day for a month….

She’s excited Noah sent the genetics test, to find out which strand of the connective tissue disorder he has, and she liked that Noah has a bunch of appointments with specialists over the next couple of weeks..she said he needs a full work up…

But the main issue is Noah’s weight, gaining weight has to be Noah’s focus for the next couple of months, no matter what the cause, until he’s up to 140 minimum…

It’s going to take an entire team to support him, but she said that’s normal for severe eating disorders…

It takes a village 🥰❤️

Posted in Uncategorized | Leave a comment

https://www.yahoo.com/news/man-rare-cancer-given-6-121608674.html

It’s amazing how much medicine keeps finding more and more solutions to deadly problems ❤️

https://www.yahoo.com/news/man-rare-cancer-given-6-121608674.html

Posted in Uncategorized | Leave a comment

Trying to get Noah to eat is a struggle…


Download full resolution images

Available until Aug 3, 2022


I made Salmon and rice for Noah tonight, since they were on the list of things to help someone gain weight,

And he’s been picking at it for 2 hours…

Then when I said “you’re not leaving until you finish”,

Noah said he was having a problem eating the salmon, because

“The salmon feels funny on my tongue–”

Wow…that’s a new excuse, food feeling funny on his tongue…usually it’s the sugar excuse, ‘sugar isn’t good for you’, how it feels on the tongue is a new one..

Of course I told Noah he had to keep eating it anyway, and he couldn’t leave the couch until he was finished the salmon at least,

but this is what I mean by helping Noah eat is a full time job — if I wasn’t sitting with him, he wouldn’t finish his plate — and it’s literally been over two hours and he’s probably eaten only 10% of what I put on there —

Dr Sherman gave me the idea, to start having family meals with Noah, and he’s right…it’s really the only way to make sure Noah eats everything on his plate…but it’s painful, it’s intensive, I have to stay with him and keep on reminding him ‘take a bite take a bite take a bite’

Very frustrating…

I’m really worried…

Click to DownloadIMG_4398.MOV
0 bytes

Posted in Uncategorized | Leave a comment

Trying to get Noah to eat is a struggle…


I made Salmon and rice for Noah tonight, since they were on the list of things to help someone gain weight,

And he’s been picking at it for 2 hours…

Then when I said “you’re not leaving until you finish”,

Noah said he was having a problem eating the salmon, because

“The salmon feels funny on my tongue–”

Wow…that’s a new excuse, food feeling funny on his tongue…usually it’s the sugar excuse, ‘sugar isn’t good for you’, how it feels on the tongue is a new one..

Of course I told Noah he had to keep eating it anyway, and he couldn’t leave the couch until he was finished the salmon at least,

but this is what I mean by helping Noah eat is a full time job — if I wasn’t sitting with him, he wouldn’t finish his plate — and it’s literally been over two hours and he’s probably eaten only 10% of what I put on there —

Dr Sherman gave me the idea, to start having family meals with Noah, and he’s right…it’s really the only way to make sure Noah eats everything on his plate…but it’s painful, it’s intensive, I have to stay with him and keep on reminding him ‘take a bite take a bite take a bite’

Very frustrating…

I’m really worried…

Posted in Uncategorized | Leave a comment

I agree with him

https://www.yahoo.com/finance/news/big-short-investor-michael-burry-113955173.html

Posted in Uncategorized | Leave a comment

My old nurse Cathy flying to LA to help Noah! Re: Anorexia Symptoms: Woman Dies After Eating Disorder Struggle

I touched base with Cathy today for the first time in a year or two (Cathy is my old nurse that I met just before I met you in fall 2005, I either met her the week before or week after I met Schroeder in Sept)

and I was literally crying I’m so worried about Noah and overwhelmed with the kind of support he needs right now,

And she didn’t hesitate, she’s going to fly out to Los Angeles to stay with me for a few weeks (or months) to help Noah get the support he needs and get his weight under control…

I was so moved, I didn’t know what to say…I wasn’t expecting her to drop her life and offer to come out like that, I haven’t even seen her in years…I was so moved..

(Cathy moved back to NY to help her sister when she was dying of pancreatic cancer, and ended up staying because that’s where she’s from…she told me if I ever needed her, she would come back to Los Angeles, but that was a long time ago, I wasn’t even thinking about that when I reached out to her, I just wanted to get some advice or support….when I told her this is really overwhelming to deal with *and* overwhelmed with worry she said ‘I’m coming’–

I cried for about an hour I was so relieved…I really need to be focused on so many other problems right now, it’s too much, I need help right now…

Cathy can handle everything at home as well, like needle changes, dressing stuff, everything…

This article really sent an electric shock through my body as well, thankfully I found it after I talked to Cathy….my heart breaks for this family who lost their daughter, sounds like Noah, got worse because of Covid lockdown stress on her…

The article covers a lot of things I’m going through right now, even mentioned how hard it was to support their daughter with her eating disorder struggles because they also had 3 other kids, and I was like yes, eating disorder is so hard because if you’re not watching them *constantly* they don’t eat…

Just like Noah, how her daughter was obsessing over whether or not she took a sip of Dr Pepper sugar or sugar free…reminds me of Noah talking about sugar…I don’t know how many times I’ve said over the last couple of weeks ‘I don’t give A FUCK what you eat you need calories…you can worry about what you’re eating and getting healthier later…”

Cathy thinks Noah needs *immediately* a team of experts, psychiatrists, nutritionists, etc etc, which is exactly what you said yesterday too, Noah needs to see a bunch of people right now..

Right now, Noah had an appointment with dr Davidson to talk about the TPN on July 29th and Dr. Golderg about endocrinology on August 18th…hopefully Dr Davidson will get a cancellation so we can start sooner…this article has really scared me…Noah looks much worse much worse than this young lady does…

Do you think I should take Noah to be admitted in a hospital somewhere now?

https://news.yahoo.com/woman-23-dies-anorexia-struggle-135803003.html

Posted in Uncategorized | Leave a comment