I really hope someone wins the dang Powerball today

I’m getting sick of buying tickets 🙄.

Noah likes to keep reminding me ‘it’s the poor people’s tax Mom’…

I guess I’m paying’ it 🤪

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Covid is like living in a bad horror movie that I want to end so badly but we may just be getting a plot twist and now starting Act 2…

Friggen scary…all Covid needs to do is mutate into an Ebola like form (which it could totally do that),

and the degree of human death and destruction a mutation like that could cause would make the first wave feel like a warm up…

https://www.yahoo.com/news/the-next-us-covid-wave-is-coming-why-it-will-be-much-weirder-than-before-200044795.html

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Wow, ouch…I coughed so hard…

This is kind of embarrassing, but I coughed so hard I vomited *and* pissed myself at the same time — it was like my entire body had a momentary super intense spasm — I pulled another muscle in my stomach area —

This cough is really weird…I gotta start my IV antibiotics again…I’m getting so low on my immunoglobulin, that’s probably the root of most of my problems…I’m going to figure out going back to Canada soon…

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Noah just did a bunch of bloodwork :)

We should get the results back early next week, we’ll do his bloodwork every week while he’s in recovery, to make sure we don’t shock his system too much. 🙂

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Former NFL QB Jake Plummer is now a mushroom farm…

We should look into this Noah — there might be something in mushrooms that could hell you feel better and help you with your weight 🤔

https://www.yahoo.com/sports/former-nfl-qb-jake-plummer-is-now-a-mushroom-farmer-in-colorado-160030243.html

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CNN: No antibiotics worked, so this woman turned to a natural enemy of bacteria to save her husband’s life

Wow — this is fascinating — I wonder if there’s a way to purify this process and have it in stock in major hospitals for emergencies just like this one 🤔

No antibiotics worked, so this woman turned to a natural enemy of bacteria to save her husband’s life

Read in CNN: https://apple.news/AlPD5ykQDQZK4spMA8eXb1A

Shared from Apple News

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Noah’s final ‘well check’ at Pediatrician’s office

Noah had his last well check today, it’s basically a good-bye meeting…wrapping up one leg of Noah’s healthcare journey in preparation for the next leg…

Noah weighs 98 pounds without any clothes on…98 pounds…1 pound *less* than the last time he was there a couple of years ago…

Pediatrician reiterated Noah looks malnourished and that he needs a comprehensive strategy to overcome it…she agreed college isn’t an option until his health gets stabilized…she likes that Cathy is coming to help, clearly Noah needs a lot of support right now…

And…if that wasn’t enough, Noah has a fungal infection all over his back, probably related to his malnourish/immune deficiency. we have to get a cream to put on it twice a day for a month….

She’s excited Noah sent the genetics test, to find out which strand of the connective tissue disorder he has, and she liked that Noah has a bunch of appointments with specialists over the next couple of weeks..she said he needs a full work up…

But the main issue is Noah’s weight, gaining weight has to be Noah’s focus for the next couple of months, no matter what the cause, until he’s up to 140 minimum…

It’s going to take an entire team to support him, but she said that’s normal for severe eating disorders…

It takes a village 🥰❤️

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https://www.yahoo.com/news/man-rare-cancer-given-6-121608674.html

It’s amazing how much medicine keeps finding more and more solutions to deadly problems ❤️

https://www.yahoo.com/news/man-rare-cancer-given-6-121608674.html

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Trying to get Noah to eat is a struggle…


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I made Salmon and rice for Noah tonight, since they were on the list of things to help someone gain weight,

And he’s been picking at it for 2 hours…

Then when I said “you’re not leaving until you finish”,

Noah said he was having a problem eating the salmon, because

“The salmon feels funny on my tongue–”

Wow…that’s a new excuse, food feeling funny on his tongue…usually it’s the sugar excuse, ‘sugar isn’t good for you’, how it feels on the tongue is a new one..

Of course I told Noah he had to keep eating it anyway, and he couldn’t leave the couch until he was finished the salmon at least,

but this is what I mean by helping Noah eat is a full time job — if I wasn’t sitting with him, he wouldn’t finish his plate — and it’s literally been over two hours and he’s probably eaten only 10% of what I put on there —

Dr Sherman gave me the idea, to start having family meals with Noah, and he’s right…it’s really the only way to make sure Noah eats everything on his plate…but it’s painful, it’s intensive, I have to stay with him and keep on reminding him ‘take a bite take a bite take a bite’

Very frustrating…

I’m really worried…

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Trying to get Noah to eat is a struggle…


I made Salmon and rice for Noah tonight, since they were on the list of things to help someone gain weight,

And he’s been picking at it for 2 hours…

Then when I said “you’re not leaving until you finish”,

Noah said he was having a problem eating the salmon, because

“The salmon feels funny on my tongue–”

Wow…that’s a new excuse, food feeling funny on his tongue…usually it’s the sugar excuse, ‘sugar isn’t good for you’, how it feels on the tongue is a new one..

Of course I told Noah he had to keep eating it anyway, and he couldn’t leave the couch until he was finished the salmon at least,

but this is what I mean by helping Noah eat is a full time job — if I wasn’t sitting with him, he wouldn’t finish his plate — and it’s literally been over two hours and he’s probably eaten only 10% of what I put on there —

Dr Sherman gave me the idea, to start having family meals with Noah, and he’s right…it’s really the only way to make sure Noah eats everything on his plate…but it’s painful, it’s intensive, I have to stay with him and keep on reminding him ‘take a bite take a bite take a bite’

Very frustrating…

I’m really worried…

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