Monthly Archives: January 2012

Here is a partial list of the infections I’ve had over the years…I guess you could say this is the gory details of my medical case laid out right here–right before your vary eyes! (‘Partial’ because I’m just rattling off … Continue reading →

Ah, music to my ears… Sort of. Today when I was at my 8 year old son’s school, we were sitting together watching the kindergarten students put on the annual Chinese New Year’s parade. Near the end of the parade, … Continue reading →

It’s just an aspect of my medical case that befuddles me to this day– How can so many smart doctors be so dumb? I’m kidding, of course–I know they’re not dumb–but the number of times doctors have been wrong demonstrates … Continue reading →

I met this super nice woman from Fiji at Cedars today, and she said she lives on a remote island with her husband (who was in the hospital having quadruple bypass surgery), and she told me I should eat raw … Continue reading →

This is a frustrating, but understandable aspect of my medical case–helping doctors understand how to approach ordering medical actions for me. (Mainly how it’s different then how they help the majority of their other patients–explain why the rules are different.) … Continue reading →

I figured shipping blood from Canada was going to be a battle….nothing on my case can be straightforward 🙂 Begin forwarded message: From: Teddy Date: January 27, 2012 11:14:35 AM PST To: RS Subject: Re: Shipping blood to Philadelphia Thank … Continue reading →

So I’m now a step further into figuring out how to ship the blood, though I think it’s going to be a little bit of an obstacle course, because my mother lives in Virginia and my father lives in Canada. … Continue reading →

I’m happy that we’re moving one more step closer to sending our blood, especially on a day like today where I’m feeling particularly bad–even worse than I normally feel, which is bad to start with– If I could at least … Continue reading →

This is just something that came up in the last few days, that I’m very excited about. There is a big genetics project going on at Children’s Hospital in Philadelphia, and I just found out my son and I are … Continue reading →