WAS protein test: Not Wiskott-Aldrich, but what is it?

This is an example of some of the bizarre test results to some of the immunological tests we’ve had done.

Clearly, this result is *not* a positive result, but it’s not a negative result either.

“Essentially normal” is the biggest misnomer in medicine–a test result is either normal or it’s not. It may be an abnormal result, but not clinically significant (if the patient is not sick for example), but it’s still an abnormal result.

I had one immunologist I saw on the East Coast, Dr. Oral Alpan, who said he thought this test result was picking up on our immune deficiency, even though it’s not Wiskott Aldrich.

I think he’s right–like catching the residual of a falling star, when you can’t see the star itself.

But what is this result telling us? Where to look next?

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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