Medical To-Do List: Week of February 20, 2012

Week of February 20, 2012

* GI appointment Tues, Feb 21sf 4:30pm. Follow up about strange abdominal swelling. I’m sleeping very strangely now too. Too deeply. The bomb could go off and I wouldn’t wake up.

* mail our blood to CHOP–yea!

* follow up about mailing blood to CHOP to make sure it got there–double yea!!

* Gyn apt Wed at 2:30pm. Same appointment as last Friday, I just moved it because it was David’s birthday and I wanted to do a cupcake party at school. Normal parenting duties still apply for the immune impaired as well…at least the ones we can do 🙂

* reschedule my ultrasounds. (Oops. See #1 on this list.)

* research…or at least attempt to research, available genetic immune testing available for rare disorders that involve impaired immune response. (If I was still drinking alcohol, I’d need a few shots to get me through this one. Just for the entertainment factor.)

* organize my IV gluthiathone injections. (Should I do it?) The one shot I did in Dr. H’a office seemed to help. (Can they hurt me?) It’s all suppose to arrive on Wednesday.

* Follow-up with Dr. Puck’s office, find out why they haven’t mailed blood kit for Correlegan yet.

* post a cry for help on a thousand doctor websites. Hmm. I guess I already tried that one. I might be better off just looking for someone to tutor me in medical immunology lingo!!!

Go t cell receptors go!

(WTF is that exactly anyway?) 🙂

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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