Reading about strange immune deficiencies…talk about impossible!

I’m trying to read about all of these primary immune deficiency tests available at this lab in the Netherlands, to see which ones would make the most sense for my son David and I to try…

Not an easy task, since most information about immune system tests are written in Greek. Or is it Latin?

Whatever it is, it ain’t normal people speak, so most of the time I’m reading about the immune system is time spent just scratching my head trying to fish for a word here or there that either helps explain our case, or a word that helps me at least eliminate a test…

The easiest tests, are the ones that test for excessive production of different cells of the immune system–while I don’t understand the meaning of most of the different parts of the immune system and its cells (like cyrokines, thr, ils, pathways, etc),

I know that ‘excessive’ is not the problem we have, so I can eliminate any test that is looking for a disorder involving excessive. We have a problem in the other direction.

One test that would be interesting, is Wiskott-Aldrich…we don’t have that, but maybe we have some new variance that they didn’t know existed?

(Minor, of course, is like saying a /minor/ 7.0 earthquake. Your immune system is definitely the one thing you don’t want any weak spots anywhere.)

I want to do a couple of these tests, I’m just not sure which ones would be the best ‘educated guess’…my lack of medical knowledge is hurting me here, that’s for sure.

Darts on the wall is always a good back-up plan. Sometimes, we just have to go with fate and destiny to help make our choices– 🙂

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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