Monthly Archives: February 2012

Dracula–I need you! CHOP is calling–

Where to draw our blood…not every lab will draw your blood then let you take it with you. I’m hoping Quest or Lab Corps will. Nothing can ever be easy…Hmmm… Begin forwarded message: From: Teddy Date: February 11, 2012 4:04:16 … Continue reading

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What it’s like to feel like sh*t all the time

This is a difficult one to put into words…especially when I’m cursed with the ‘but you look so healthy’ gene. It’s hard…really hard. But it’s even harder because I look so normal, so only very few people believe or understand … Continue reading

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WAS protein test: Not Wiskott-Aldrich, but what is it?

This is an example of some of the bizarre test results to some of the immunological tests we’ve had done. Clearly, this result is *not* a positive result, but it’s not a negative result either. “Essentially normal” is the biggest … Continue reading

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*Great* call from Dr. Puck’s office–and the CHOP blood kit arrived!

Dr. Puck’s assistant, Mica, just called and David’s insurance is going to cover 80% of his NEMO test at the Correlegan lab–that’s good news. I was wondering what other tests we’re going to do, but Mica said Dr. Puck wants … Continue reading

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Dr. D never ceases to amaze me

The simplest things in life can often have the most profound meaning, especially if they happen at the right time– This note I just got from Dr. D means the world to me…. It’s not so lonely when you know … Continue reading

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Dr. Puck visit went very well :)

This is a copy of the email I just sent to David’s pediatrician, who is a very kind and thoughtful physician. She is also on a weekly news show in Los Angeles now, so she’s become extremely busy–and it’s such … Continue reading

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Go karts in Redwood City.

The trip can’t all be about medicine 🙂

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Hippocrates. In the flesh.

This is the guy we need on our case! Right here in San Francisco– 🙂

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So far, San Francisco is going very well :)

The meeting with the fellow was very interesting, and the main doctor, Dr. Puck, was very kind too. The fellow and the doctor just went off to talk, so Noah and I are taking an iPhone break… Hopefully, we’ll have … Continue reading

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On our way to San Francisco!

Now I’m going through the process of shaking off the old and getting ready for the new–on to the University of San Francisco! As hard as it can be, I have to shake off annoyances off other doctors–otherwise, it’s like … Continue reading

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