The loneliness that comes with being ill

We don’t really realize how much the world is designed for the healthy until we become ill.

As my uncle liked to say, “you don’t see a lot of chronically ill politicians.”

The internet of course has changed things, many things in many good ways,

but the day to day living…even just having the mental energy to put together a’to-do’ list,

is energy not always there.

I’m over that I look healthy. There are many sick people out there who look healthy. You know who you are. I think of it more now as a privacy blanket. It’s really no one’s business, is it? Or a silver of a chance of normalcy…because when I do find the energy to ‘do something’, it’s nice to look normal. I can fit in for an hour or two.

I’m just grateful to still be here.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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