Monthly Archives: July 2012

David’s horrible case of pink eye

David has now done three courses of different eye antibiotics (Vigamox, Tobramycin and Moxeza), and it just won’t go away. Each one has started to help, and then it stops working. This last time, David’s pediatrician wanted him to stop … Continue reading

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Constipation, digestive enzyme–maybe our immune deficiency is related to our constipation?

I was in Walgreens today picking up David another prescription for his pink eye that just won’t go away, and I started reading this pamphlet on gas (in addition to chronic constipation, David and I also suffer from painful gas … Continue reading

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You’ve been invited to play Tiny Village!

zoenoah has invited you to play Tiny Village! Follow the link to get started: http://static.tinyvillage.tinyco.com/giftlanding.html Sent from my iPad

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Revealing conversation about Canadian healthcare at the poker table

As a treat, my father bought Peter and I into a poker tournament, and as I normally do in the U.S., I got chatting with other players at the table about the differences between Canadian and U.S. healthcare. I shared … Continue reading

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Letter to the urgent care doctor my son yesterday

I just sent this letter to Dr. Kyrillos, who David saw yesterday for his pink eye, letting him know about the conversation I had with Dr. Puck’s office regarding the results of David’s NEMO test. The timing of the call … Continue reading

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Amazing doctor I found at the Walmart in Ottawa, Ontario

For all the U.S. haters of the Canadian system, this doctor undisputedly proves them wrong. I found him just getting a prescription for David’s pink eye. This is an email I wrote to my father about him…I’ll write more later … Continue reading

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News from Dr. Puck’s office :)

This is an email I wrote to one of David’s doctors. I’m really starting to think more and more that his strange NEMO result might be the answer… We just need the best minds I can find in medicine to … Continue reading

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Crying and stuff…some days just hurt more than others

I try not to delve too much into self pity…goodness knows I’ve spent enough time in the hospital to have met many people who are suffering much more than I am… it’s just that some days, everything is harder than … Continue reading

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NEMO test results: Finding: “Inconclusive”

I’m still trying to digest all of this information…unfortunately, my limited scientific background has me flatted under a mountain of ignorance… It would be years for me to figure out what all of this means… I think it means that … Continue reading

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NEMO results are in–I can’t wait to see them!

I just got a message from David’s pediatrician, that the results for David’s NEMO tests are in, and like many of our other immune tests, the results are semi positive…I guess the results are not diagnostic, but the results of … Continue reading

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