NEMO results are in–I can’t wait to see them!

I just got a message from David’s pediatrician, that the results for David’s NEMO tests are in, and like many of our other immune tests, the results are semi positive…I guess the results are not diagnostic, but the results of the test are not normal, either.

Geezus I wish all this made sense to me!!! I should have taken more science classes in college.

Either way, I can’t wait to see them though…

Begin forwarded message:

From: Teddy
Date: July 6, 2012 12:16:10 PM PDT
To: Dr. Crosby
Re: Lab results

Dr. Crosby,

I just heard your voice mail message–wow wow wow. I’m kind of surprised that the results of this test are another semi-positive, but then in some ways I’m not…

(The reason is, because these results fit within what I’ve been saying since the very beginning–that David and I have some kind of partial immune deficiency. That’s why it’s been so hard for people to find the answer, or for doctors to want to help us–they see children with severe immune disorders, who are clearly suffering more than us…but…)

But, as you know, we suffer a lot too and I really want David to live a long a normal life, and his best chance at that is finding the answer and then trying to fix it…

Honestly, it would have been worse if this test had come back completely normal. I would have felt totally defeated given how many of these NEMO symptoms we have.

Thanks for following up with the lab, and I will call Dr. Puck’s office to make a follow-up appointment to figure out what is the next step.

It sounds like David and I very well might have a new immune deficiency after all.


On Jul 6, 2012, at 12:03 PM, Dr Crosby wrote:

Hi Teddy,

Hope you got my voicemail last night. I am faxing Noah’s result to you at 323-375-xxxx.

Hope that is the correct Fax.

Dr. Crosby

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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