My bucket of records…which ones will the N.I.H. want?

My son David and I are supposed to be leaving for the N.I.H. on Sunday, and I’m trying to figure out which records I should bring. I know they don’t want all of them.

They say they want all of them, but I’m almost positive they don’t. M of these records are very unremarkable.

And that (unfortunately) is what is so remarkable about my case–my hundreds and hundreds of normal blood tests when later on its *proven* that I do indeed have a disease process going on. A disease process that most likely would have triggered an abnormal blood test in a person with a normal immune system.

But without clinical physician notes next to the lab tests (which I don’t have), it’s almost impossible to get a sense for that.

*Alas*, what to do….what to do…

And these are not even all of my medical records either. This is just what’s in my bucket.

I can’t even carry the f***er.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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