Monthly Archives: October 2012

David is about to have his electrical conductivity study…and he’s not very sure how he feels about this! Had to bribe him with lots of iPad privileges and some new minecraft plushies!! Hopefully, he won’t get too worked up–he just … Continue reading →

This is the email I just sent to Alison, who was the first researcher who really stepped in to help… I have a headache just being me some days. I should have majored in biochemistry… Begin forwarded message: From: teddyleigh … Continue reading →

Now that they have my father’s saliva, we should be able to figure out how much this NEMO mutation might be responsible for our problems. If my father has the mutation, it’s looking much stronger of a possibility. If he … Continue reading →

Who ever thought that would be so painful! I got it…eventually–

The more I think about my case, the more I wonder if it is NEMO or not… Begin forwarded message: From: Teddy Date: October 13, 2012 12:55:48 AM EDT To: RG Cc: Alison Subject: Re: NEMO results. There is a … Continue reading →

I wish there was a way to get some of this Mummy’s DNA and test for NEMO 🙂 http://www.teethcenter.com/another-mummy-discovered-with-mouth-of-cavities/#.UHfMXiyPP3A.mailto Sent from my iPad

It just amazes me how efficient and friendly this place is, and all I’d have to show is a Canadian health card and it would have been completely free. It’s just shocking how much U.S. citizens are lied to about … Continue reading →

Heading to Ottawa to get blood from my father. One way or the other, he’s gotta cough it up! 🙂

So much of my intensity over the last seven years, “I’ve got to get the answer, I’ve got to get the answer”, was because I was looking for someone to figure out how to cure me so I could return … Continue reading →

So I’m still digesting everything that happened last week, trying to make sense of it all (am I ready to just give up and accept nothing can be done for David?), and while I ponder life’s heavy parental concerns, life … Continue reading →