Life beyond the NIH: same old s***

So I’m still digesting everything that happened last week, trying to make sense of it all (am I ready to just give up and accept nothing can be done for David?),

and while I ponder life’s heavy parental concerns,

life has now officially return back to normal for Teddy and David. Back to doctor’s offices.

As much as I really want to touch base with all of our doctors and share first hand what happened at the NIH,

first on my list is following up with what Dr. Hanson expressed a desire to see the results of–an electricity conductivity test for David.

Since we’re very lucky to have his mind on our case, I figure first priority is something he would like the results of–

And then, flu shot for David. I have to get him a flu shot! 🙂

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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