IVIG…life saving stuff

It’s impossible for me to put into words all the good things IVIG does for me.

I can feel it working in my body in ways that most people don’t even believe is possible to feel.

I’m going through a rough relapse right now…so rough, that I even wondered if this is the end. The last few weeks haven’t been good, but then about a week ago I took a turn for the worse.

The worse symptom is an inability to sleep. It’s not anxiety. It’s this strange, eerie inability for me to cross this plane to the next into sleep. It only happens when I am very very ill. It’s like the disease has so penetrated my brain tissue, that it keeps me from being able to sleep. It’s a sign to that the end is near.

Thankfully, the new cocktail of antibiotics I started seems to be working…but it’s rough going. I can tell my body has really had enough after 7 years of antibiotic therapy. It’s worn out.

And then there’s IVIG. This stuff is liquid gold in a bottle. I wish I could take some every week. I wish it wasn’t so expensive. I wish I lived in a world that cared enough about people like me so that it was available to all of us who needed it.

I wish I wasn’t so sick.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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