Sushi, Reishi, Green Tea…and prayers

Whenever anyone gets really sick, it’s normal for us to get to a point where we just freak out and start throwing everything at the wall, hoping that something, well, works.

This is the point in our journey that doctors really hate, because patients can inadvertently do something ‘stupid’, and hurt themselves.

But let’s face it–when you’re staring down the tunnel of death, being at a point where you know doing nothing is going to lead to your death, doing something that hurts myself along the way isn’t a scary prospect.

Feeling grateful to God and the universe in ways that I can’t even put into words that I’ve been given more time with this recent IVIG dose, and so I’m trying to do whatever I can to avoid another crash and stay on this planet for as long as I can for my son.

I even went to the gym last night. And I’ve been using the sauna too.

But the main thing I’ve decided to saturate myself with (in addition to my antibiotics and antifungals), is Japanese mushroom extract pills and sushi…

I’m going herbal, I guess you say 🙂

Thankfully, there are a few sushi places in walking distance from me since I’m not up to driving.

It’s only been a few days, but I definitely think the Reishi mushroom extract is doing something…how good, I don’t know, but last night I suffered through a night of chills and other typical infection symptoms, symptoms I don’t normally get. I can only think the Reishi might be working a little bit.

(Or I picked up something else bad from the sushi?)

Thankfully, I’m seeing my immunologist tomorrow Dr. Kachru, and she recommend a good person to see who knows something about all of this, I just forgot their name…It’s always good to have an expert opinion, even if you end up disagreeing. They do know more than we do about medicine, even if we know more about what’s happening with our bodies.  But that knowledge is really important to help guide us.  “The difference between medicine and poison is in the dose.”  You don’t want to end up on the wrong side of that equation.

Being this ill makes me appreciate how much I enjoy being alive.

Hopefully, all of this sushi, Reishi and green tea I’m gorging on will help me make it a little bit longer.


About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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