I just sent this to David’s father, in the event something happens to me.
Hopefully, David won’t go through what I’ve been through because they will find the answer and cure him, or David will have enough preventative treatment that he will be okay (like antibiotics and IVIG).
I’ve been fighting to stay alive for a long time, and I can feel myself losing the fight. I just hope to stay alive to get everything cleaned out…I don’t want to leave a mess behind–
Begin forwarded message:
Date: May 23, 2013 12:46:51 AM PDT
To: Luke Pals <l_nelski>
Cc: rita kachru <ritakachru>
Subject: Noah’s daily antibiotic
I can not stress enough the importance of David taking his daily antibiotic. Because his immune system is impaired, a little antibiotics every day is much safer (and cheaper!) then developing more serious infections–it’s giving him a little protective shield.
(For people with normal immune systems, daily antibiotics would hurt them, but for David, it helps stabilize his immune system because it helps keep the diseases out of his body.)
This is very important, because I only became very ill over the last few years due to an infection that would have been avoided if I had been doing daily antibiotic therapy.
It’s cost Joe thousands to keep me on the planet. These are not resources you have, so it’s best for David to just avoid the serious infections as much as possible in the first place.
Do not let people dismiss the importance of this. Anyone with any questions, just refer them to Dr. Kachru over the years–she can explain (better than I can 🙂 how the immune system works and why David benefits from such therapy.
Immigrate to Canada if you can. Otherwise, set aside money for co-pay and deductibles. There will be years you will be paying the maximum on your plan.