Monthly Archives: June 2013

BP 90/45…and I’m feeling it too

When they woke me up at 6am to take my blood pressure, I felt so bad I knew I would be low. And I was right–it was 88/45 (and the nurse took it twice to confirm). Then I just asked … Continue reading

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Positive sputum for mold–no fever or elevated wcb

I just thought of something– I just had a positive sputum culture for mold, and as usual I had no fever and no elevated wbc. I wonder if this is the way it is for everyone, or if this is … Continue reading

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Positive mold sputum and Pulmonary function test today

I must have really stained a muscle during one of my coughing fits, because things I do really hurt bad. And my coughing is absolutely atrocious it hurts so bad. I guess my sputum tested positive for mold. I know … Continue reading

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Pain in my right lung is fierce

Thank goodness for morphine. And IVIG. The IVIG is what is bringing me back from the brink. I’m hoping this pain in my right lung starts to subside…it hurts really bad when I cough. I’ve never had a pain like … Continue reading

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Pneumonia under control with IVIG

IVIG is just amazing stuff. The antibiotics I was on were helping, but definitely not helping enough. This was the fastest growing infection I’ve ever had in my life. I’ve never felt anything like this before. I was so sure … Continue reading

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Saying Good-Bye

I don’t think there’s ever an easy way to ‘get your affairs in order’, especially someone like me who has so much going on and I left too much disorganized. I have to admit, I’m sad to hear that I’m … Continue reading

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Trying to keep things in motion after I’m gone

I’m hoping that things will stay in motion to help my son get the answer to our immune deficiency after I’m gone. If anything, I’m hoping that my death will be the final trigger to solve it– I final wish … Continue reading

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My symptoms are horrendous.

I’m torn about would be the most effective way to try and save my life at this point. I’m shocked by what is happening to my body, but I also know that most ER doctors are not going to believe … Continue reading

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The violent cough and the splinter are connected

I just realized that the violent cough I’ve developed that intensified as my night went in the ER on Sunday–and my splinter wound–are connected. Whatever got inside me, is super fast growing. That’s why my bp was already dropping. I’m … Continue reading

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Please help my son David Noah get the answer

Please help my son David Noah get the answer to our immune deficiency. He will suffer greatly and needs help. Tara

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