Whatever is brewing in my urine is back in full swing…it must not be responsive to doxycycline or Flagyl, since I’m currently on those.
(Whatever I cultured positive to at the end of April, could that be coming back?)
I have to get up in the night to pee, the increased urgency, leakage, lower abdomen swelling, and ugh…the smell.
It’s the weirdest bad smell–
Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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