As I was getting ready to dose myself up with some Ig tonight,
I held up the little bottle of 20ml Ig towards David. I leaned towards him, “do you know how much this little bottle costs in the U.S.? This bottle costs $500.”
And without a moment of hesitation, he said,
“That’s why we have to stay in Canada Mommy”.
He said it like he was telling me what we should do.
I hope I can keep getting it. Then I don’t know David. I don’t know.
Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
This entry was posted in General Life
. Bookmark the permalink