Issues with my new port

I’m still too exhausted (and frustrated) to talk about all of the problems I’ve had with my port…it’s been a huge headache. Besides the pain (which is to be expected), I was so sick I actually had an elevated wcb while in the hospital–I can literally count on *one* hand the number of times, in my life, that I’ve had an elevated wcb, even though I’ve had countless infections, too many to list.

For me, an elevated wcb is very serious business–not to mention I had horrible symptoms to go with it. I’ve had 3 elevated wcb in my life. In 1992, 2005 and now 2014. All times ‘mildly’ elevated, even though I was deathly ill.

Complicating things further, the incision for my new port is right over the port itself (not where it’s supposed to be, a cm away), which now makes it almost completely impossible for me to access it by myself until it fully heals.

(Technically, I’m not supposed to be accessing my port by myself at all, but I’ve just been sick so many years it just became easier (and cheaper) for me to do it myself.)

I’m supposed to be going back to Canada (I’m already supposed to be there), but now I have to wait to make sure my wcb is still trending downwards (I was on Zosyn in the hospital, and now I’m back on Doxy, so I have to make sure the infection is responding), *and* I have to figure out a way to get my port accessed in Ottawa before I leave now too.

It’s almost been a week since the surgery, and the pain is still pretty bad. I can’t move my left arm that much, or lift things. I probably can’t travel for a few more days anyway.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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