Hmm…my medical book

If I take my father’s advice and shut up about my health problems, then I’m not sure what I should do about the book I wrote about the U.S. healthcare system I’m almost ready to publish.

I can’t publish the book under a fake name–the entire point of the book is to shed light on the truth, and I may need to back up some of my statements, so I need my real name.

I guess I could either just use my middle name, and not talk about it directly on FB,

or, I could downplay the severity of my health problems in the book (emphasize more the ‘I’ve got the cure’ aspect of my case).


I could just say fuck my father’s advice and just publish the book as it is–

(I’ve gotten much farther down the road and I have much more proof of our immune deficiency, making if easier for me to talk about it openly–)

It’s just my nature. I’ve always had an ‘open book’ approach to life (much to my mothers dismay my entire childhood). Why change now?

(Plus, I’m not sure I could ever go to the other side, no matter what people think of me…I’m used to people being cruel. I used to get upset when I was younger, ‘why did she say that about me?’, my friend in film school replied, ‘Tara, when people don’t have talent, all they have are their claws.’ Ugh. So true.)

Fuck em if they think I’m just being manipulative/lying or whatever.

They’re not my friend anyway.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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