I decided to also call my mother directly to talk with her about all of this, but she wasn’t home.
I spoke with my half sister Brittany, who said she vividly remembers Mom getting a medical package, and her dad being adamant Mom send the blood, and Mom shrugging and saying, ‘fine, I’ll do it’, so Brittany believes Mom did send the blood, but it got lost.
As much as this is all still very frustrating,
I’m very relieved to hear she may have sent it, but it got lost in the process.
The other option was so evil, it was making me upset deep in the core of my being. Here I’ve been sick for many many years, been hospitalized I don’t even know how many times, my loved ones have endured great expense to keep me alive, at times I’ve suffered in extreme pain,
and all I need is one vial of blood from mother for this big study–the *only* study I have on the table to try and help us. It’s not like I’m loaded up with options.
(If you think doctors don’t like our case, our case is too complicated for even most researchers–there simply isn’t enough funding.)
I’m relieved they’ll still do the study after two and a half years of waiting. That’s a miracle right here given how long its been.
I’m very very grateful to be able to get this going.
I need to focus on the positive in this moment.