Blood pressure–going back down

My blood pressure is starting to go back down again…it’s not a surprise given how I’m feeling…

I’m not sure what to do…I’m tempted to just go off all antibiotics for a couple of days, let it dip down to the 80s (like it did in Canada), then go to the lab and have my cultures drawn…

There goes hoping the week of Vanco was going to be enough…I really hope that they didn’t screw up and cause something super resistant, since I didn’t get enough Vanco…

I’m so frustrated right now. Just sad and frustrated.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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