Tired and frustrated.

It’s been a rough last few days. I wish somehow there was a magic wand that could solve all of these problems (wouldn’t that be nice?)

Life isn’t about having no problems, life is about learning to deal with and make the best of the problems that we have.

When you’re sick, you can’t solve some life problems because you’re too busy trying to solve your health problems. That’s why chronically ill people end up on disability–not because they couldn’t work sometimes, but because it’s so time consuming to just be a patient, it doesn’t leave room for much else.

Death doesn’t scare me anymore. Making sure my son is going to be okay scares me.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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