Family Struggles to Find Diagnosis After All Four Children Develop Mysterious Muscle-Wasting Condition

Posted on July 10, 2015 by hopeforanswers

This is why it’s so hopeless for me right now. I think modern science needs to finish figuring out all the know genes that work and how they work (ie–these are the genes for brown hair, these are the genes for blue eyes, etc) and so they can then study the genes that they don’t understand.

https://gma.yahoo.com/family-struggles-diagnosis-four-children-develop-mysterious-muscle-234459272–abc-news-wellness.html?soc_src=mediacontentsharebuttons&soc_trk=ma

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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