My Life in Medicine

I think my next book should be about what it’s like to be chronically ill…an ode to the healthy people…unless someone has experienced a serious, debilitating illness (that they were able to recover from later), they don’t understand…

Besides waking up every day of your life with physical problems (like pain), the biggest thing I don’t feel like healthy people understand, is the sheer amount of time and effort it takes to be a patient–everything from scheduling doctor appointments (and making arrangements to get to these appointments), tests, taking medications every day–it just never ends.

It’s not about asking people to feel sorry for us, it’s just that they don’t understand, so when they try to hold us to the same standards of normal healthy people, of course we’re going to fail.

Bring chronically ill is walking through life with a concrete slab on your backs. It’s a lot more difficult to get from point A to point B.

If a normal person can get let’s say 5, 10, or 20 things done a day,

we’re lucky to get one.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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