Damn friggen port-a-cath

I need my port in my chest so so SO bad (otherwise I wouldn’t be able to get anything into my body because my veins are awful),

but my port clots up so much…this is my *5th* port in my chest (most people have one in their lifetime–they’re supposed to last at least 5 years–).

Like so many other things in my medical case, for reasons they don’t understand, I have more fibrin in my blood than a normal person, so it makes my port all yucky around it…like a spider casting a cocoon around a caught fly…

I’m so dependent on this port, it just makes all this so miserable…I’m at Cedars right now trying another round of TPA *again*, but I already see the writing on the wall…I’m going to have to get a new one 😦

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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