My Days Before IVIG…

I going through some old emails, looking for something completely non medical related, and I stumbled upon this email–

Thank you very much for everything. Things are not smooth sailing for me (ie–this neck/sublingual gland infection I just can’t seem to get rid of–),

but things are *infinitely* better for me now that I’m on IVIG on an ongoing basis.

Now, hopefully we’re on the verge of nailing this disorder once and for all, so Noah can do a little IVIG and avoid the major pitfalls I’ve endured–


Begin forwarded message:

From: Tara
Date: December 27, 2011 at 1:09:15 PM PST
To: Dr. K
Subject: Skin infection

Dr. Kachru,

I’ve developed a strange skin infection on my chest–they’re little dots, similar to pimples. They look similar to other skin staph infections I’ve had in the past.

A couple of them have a little pus in them, so I’ll talk with Dr. Sherman about trying to culture it if they’re still there on Thursday. I put some bacterban on them, so hopefully they’ll be gone by then…

In general, I’m actually in bad shape right now–mostly GI issues, and I’ll update you the next time you. It’s been a little rough these last few days 🙂

Any word from the Netherlands lab? I really want to order that NEMO test for Noah…the sooner the better. Please ask them if he can be a part of that PID assay screening, and then pick the three most likely gene candidates to try…I know it’s a shot in the dark. But we’ll never hit the target unless we start firing the gun 🙂

Thanks again for everything, and I hope you and your family had a wonderful thanksgiving–you deserve all the best!


About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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