Neck MRI and blood results

Dear Dr. Dxxxx,

I’m looking forward to seeing you again tomorrow as always. From the MRI results, everything looks pretty good and the lymph node is 10mm, which I think is an improvement from what it was a few weeks ago on the ultrasound.

My sed rate is still high, which is expected since I’m still fighting this infection…it’s one of the few blood tests that tends to show anything when I have an infection…

(Any luck with your friend at the NIH? Even if he can tell us where we can get our C2 gene function test done (and how to write out the order), that would be really helpful. We know both Noah and I have a big deletion there, so it would be great if we can just find the lab that can do a function test on that gene–)

Thanks again for everything…yikes what a journey. I know I’m a difficult case, so I really appreciate your insight.

Warmly,
Tara 🙂

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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