I never know how to fill out all of this paperwork

Filling out radiology paperwork is so hard, because of my immune deficiency I don’t create a normal inflammatory response…what they means, is that a subtle change on an imaging study might actually have more significance for me than a normal person. A small change usually means a big problem, a problem a surgeon then can correct…

It’s been such a rough last few weeks, the stress is starting to get to me…bad stress for too long is a like a train wreck coming on the horizon. Most people don’t understand how precarious every day of my life is because of this…I’m just grateful to still be alive.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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