Message I just sent to my main doctor…

What makes it so extraordinary what he did to help me for so many years, is that this is a guy who never wanted to be my doctor…He took me on only because I had nowhere else to go. Every time I tried to find a new doctor, they either didn’t believe me when I told them I had bacterima and looked totally healthy, or they were too scared by that information and weren’t interested in helping me, for whatever reason.

I’m really hoping they get the answer for Noah one day…medicine keeps getting better and better. I have faith there’s going to be a beautiful rainbow when the storm is all over for Noah…


If I die from this infection, please know how grateful i am for everything you did for me. No one else stood by me, but you did when no one else would take my call. I’m sorry I wasn’t the best patient, and I wish I could say I tried my best, but alas, you know me…I tried in the best ways I knew how. 🙂

Please also know I’m not angry with anyone, I understand how frustrating and difficult my case was, and in all that talk I know in their hearts all the doctors I saw just wanted me to get better too. Please watch out for Noah, I don’t think Luke is quiet ready to handle this yet…hopefully I got everyone on the right path, at least to provide some direction…I think this Complement thing might either be the answer or hold an important clue…Medicine will get there and fix Noah one day. I have no doubt about it 🙂

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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