Blood pressure a little low but okay

I’m going to keep an eye on my blood pressure, to make sure it doesn’t get too low.

I’ve been super diligent on my new antibiotic regiment, and tonight is the first time I’ve started to feel a little bit better. A few days I felt really really bad, but today I’m (finally!) starting to feel a little stronger. I know it’s going to take months and months of being super diligent in order to get over this, so I’ve just got to make myself stay on top of it…

I’m hoping the throbbing pain in my jaw will go away soon, but I’m guessing it’s going to take a few more weeks (months?) before that subsides. For now, I’m grateful I’ve stopped feeling like I have one foot in the grave…

Living like this is like having a full time job you hate passionately but can’t ever take a day off…there are no holidays or vacations from an intensive medication/gravity dripping/needle changing/doctor appointments/bloodwork drawing schedule…you just have to keep doing it and make the best of it (and I do that by reminding myself how lucky I am to have great doctors and access to medical care–it helps me get through it, to be humble and grateful 🙂

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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