Noah’s on a Zpack

It started with a little red in his eye, then turned into a sore throat, then his nose started to get goey….

The same trifecta he’s had over and over again since he was a toddler.

Thankfully he doesn’t get infections as often since he started daily antibiotics, but they do come.

High school was when I started to have really bad infections…countless strep throat, sinus, bronchitis, lost my tonsils, my appendix…

So I’ve got Noah on daily Vitamin B, Cod Liver Oil, Vitamin C, a calcium bone supplement and Cranberry Extract pills in addition to his daily antibiotics.

Noah has not been the most compliant patient (we have a little trouble with compliance in this family sometimes 🤢),

perhaps maybe it was good Noah got an infection less than a month after starting school, because it reminds him that yes, this immune deficiency is real even if people don’t entirely understand it. Just because it doesn’t have a definite name doesn’t mean it isn’t real.

It’s hard for both of us to accept that sometimes. We both ache to be normal and wish this to go all away somehow,

but denial is both expensive and deadly…much cheaper to take daily antibiotics than to develop pneumonia and end up in the hospital for a week.

It’s absolutely critical that Noah needs to believe he has an immune deficiency even when others do not. Most people will never understand why he needs to take daily antibiotics because he will always look healthy, and that’s okay. They don’t need to understand.

He does.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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