23 and Me is getting screwed.

I was *shocked* to get an email regarding a ‘settlement’ from 23 and Me regarding their genetic analysis kits.

I have a lot of medical problems, and I can say with absolute certainty that the genetic report I received from 23 and Me was almost exactly correct, and it even helped explain a previously undiagnosed problem I had (scholarderma) I’m willing to provide medical records to support the 23 and Me report sent to me.

I was very fortunate to be able to get a kit before November 2013, and my son got one after that date, giving me the opportunity to compare and contrast the two reports. I was horribly *disappointed* with the second report because it wasn’t nearly as thorough. I know 23 and Me has so much more information and for reasons I’ll never understand, they were blocked (by the FDA?) to share it.

I’m not an attorney, and I definitely don’t understand all the details of what’s going on,

but please pass on a note to the creators of 23 and Me, and let them know how grateful I am for the work they’re doing.

Sometimes when something revolutionary comes along, it rocks ‘the powers that be’, but eventually the truth will persevere and the good your company has done, and will do, for many people will triumph.

I wish there was a ‘f*ck this settlement’ option for customers, I’d click on that, but alas that’s now how life goes 🙄.

When I read the packaging, there was no guarantee and I felt they thoroughly explained genetic testing for diseases and disorders was still in its early years–hence all the questionnaires. Why would *anyone* have a problem with that?? So your genes say you might get a disorder and you don’t, great, that’s a bonus.

But I would **much** rather have a warning of a potential storm coming so I could better prepare for it. Who knows how many lives 23 and Me could have saved.

Please, no matter what happens, keep pursing your mission. You will save many lives one day.



P.S. For example, I’ve had abnormal esophagus cells from scopes, and my 23 and Me report said I had a much higher than normal chance of getting esophagus cancer–hello, warning bell–Keep checking that esophagus!!! Your pre-2013 genetic tests kits were like offering people seat belts before they get into a crash. They might not get into a crash, but isn’t it nice to be prepared just in case??

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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