Noah: “Maybe the problem with our immune deficiency is rooted in how our bodies process water”.

Noah went to see his doctor by himself for the first time on Thursday (I wasn’t feeling well enough to go with him and he really needed to go, plus at 14 years old I figured he’s old enough to start communicating with his doctors directly),

and when I asked him how it went he said it went well. He said she changed his antibiotics, gave him a note to pick up an over the counter nose spray, and a note for school.

“Did you end up talking about anything else?”

Noah instantly shifted a little… I could see he wasn’t sure how much he wanted to tell me. Not because the visit was bad, but actually the opposite–because the visit went so well. It was his private time.

Noah thinks about my question for a second, then says quietly, “I discussed with her one of my theories of what could be wrong with our immune system.”

Uh, hello–this was interesting news in itself–I didn’t know Noah was developing theories of his own 🤔.

He adds, “You know how we have to take Miralax to help our colon, because we have chronic constipation, and Miralax works by drawing water into the colon–so maybe the problem in our immune deficiency is based on an inability of our body to use and process water correctly.”

HOLY SHIT. **pause button please**

After ten + years of meeting hundreds of doctors and reading countless hours on the internet, my friggen 14 year old son had an idea that I haven’t heard suggested by anyone, anywhere else in the world.

Now, I don’t think Noah is correct–I actually think the lack of water in our colon is a byproduct of our immune deficiency, a symptom of it–

But the fact that Noah could think of an idea that no one else has even whispered just blew me away.

What’s even more interesting about this idea, is that I’m not sure if anyone has even studied this part of the human immune system–no one has even thought of it, let alone developed any tests to check for it. I’m not even sure they understand exactly how water works within the immune system. We know being dehydrated is bad for the immune system, but being dehydrated is bad for a lot of things in the human body.

But how the immune system utilizes water exactly and how that connects to how it functions?

I don’t think I’ve heard anyone even mentioned it.

Ever since Noah was little, I’ve had (usually random) people tell me ‘your son is extraordinarily brilliant’, so I know he’s smart (even though he’s not the best student 😡),

but there are times when Noah says something that completely knocks-me-on-the-floor.

I was so stunned by his comment–and very aware of how under-qualified I am to even respond to his idea–

So all I could say was,

“You know what, you might be right Noah, you might be right.”

Keep those thinking wheels turning.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
This entry was posted in Uncategorized. Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s