Note to self: Ask Dr. Butte at UCLA in January what’s the mechanism that triggers someone to get a fever

I just had a revelation about our case: we need to look into what’s the mechanism that triggers someone to get a fever.

The fact Noah and I don’t get fevers when we should, has *always* been a major symptom of our immune deficiency—I think that mechanism needs to be tested and evaluated.

I had this idea, because I was just reading in my CVID group on Facebook—which is full of people who all have immune deficiency problems—yet they all still get fevers when they get infections. Sometimes even a “Fever of unknown origin.”

The fact that Noah and I don’t get fevers—even with confirmed and well documented problems—is a major clue. Like right now, I have a confirmed by culture Actinomycis and strep infection in my neck—I even have an MRI *showing* a swollen lymph node (which is also very rare—I usually never have anything show in radiology studies, usually surgeons find the problem after they cut me open—),

And yet even with this swollen lymph node, nothing on my neck is visibly swollen, nothing is red—

And of course I have no fever…

(The image of my toe looking totally normal with the 1/2 inch splinter in it says it all, but this fever problem…)

Hidden in there is the answer.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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