(Talking with Luke) Noah In Hospital Dec 24,2017

In case you need some entertainment 🙂

Luke came to see Noah in the hospital today, and half way through talking with him I started recording the conversation so I could get his idiocy on record. Luke is just like my mother—he does **not** get it. We were arguing when Noah was in the bathroom because Luke was trying to say that Noah could work in a cubicle no problem or that Luke’s family was so healthy it shouldn’t matter that Noah has a bad gene from my side…

Noah eventually comes out of the bathroom and joins the conversation, but I just wanted to get it on record in case Noah ever needs to be reminded to have faith in himself…

One of the hardest things for me was to learn how to get over the fact my mother blew off my immune deficiency for so many years—simply because she didn’t want to deal with it, but I had internalized her ‘it’s not too serious’ attitude myself—even though doctors were trying to warn her when I was a teenager—and frankly my denial almost killed me in 2005….

The one thing we both agreed on though, was that Noah should go to medical school, even though we agree for completely different reasons—Luke thinks Noah should be a doctor because it’s a ‘good profession’, and I think Noah should go to medical school so he can get access to cutting edge technology and/or have friends who will in turn help him one day.

That’s probably what this is going to take—Noah either solving it himself or having a close friend who helps him. Whatever we have is so rare, that it’s going to take that kind of love to help someone do all the work necessary to get the answer—

But he will get the answer, I have complete faith that they will solve it in his lifetime. I have no doubt about that—

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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