Thank you very much Dr. Crosby :)

Dr. Crosby,

I’ve been reading all of these horrible stories about the flu this year, and I just wanted to thank you for taking Noah’s health seriously when we were in the ER, even though others wanted to dismiss him. After learning more about this H3 flu, I really believe the shot of Rocephin Noah got in the ER as a preventive measure might have saved his life.

I’ve often told Dr. Sherman, sometimes on my case we just have to do things based on instinct—combined with what previous history have taught us about my case—and we may never know ‘for sure’ the answers to some questions, but the victory is that I got to live another day.

(On the morbid side, sometimes I’ve even said ‘if I died it would easily prove I was deathly ill’, but alas the goal is to sound the alarm bells, so that I get medical action and don’t die—and thankfully I’ve been helped many times—and still counting 🙂

I know it was nothing we’ll ever be able to ‘prove’, but I know Noah was the most dramatically sick he’s ever been to date so far, and I strongly believe that shot of Rocephin helped avoid the secondary bacterial infections he was almost guaranteed to get given our immune deficiency, if you hadn’t acted on his behalf. That’s why I’m ready to have him start low dose IVIg…it was a wake up call that playing with infections isn’t a game, and he’s had one too many breakthrough infections this year…I don’t want to wait and it’s double pneumonia and he’s resistant to lots of antibiotics cuz he’s been taking them for years. It’s time to start the IVIg and ease up on the antibiotics…

Thank you…thank you very much. I was just telling Noah he will live a long time, he just needs medical care to do it, and I want to thank you again for being there for him for his first major crisis.


(‘Major crisis’ meaning it would have been much worse without action—I have no doubt about it. Thank you. 🙂

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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