Big difference in blood pressure between left arm: 79/55 pulse 78, and right arm: 91/77 pulse 79

Wow I feel like death.

Not the kind of death that means today death, but the kind of death that means I better get myself on a better course immediately.

I’ve been putting off taking my blood pressure over the last few days, because I really didn’t want to deal with bad news and I was hoping I would just start to feel better.

Finally today I woke up and thought to myself, ‘ya know, I probably should check it…I might need to go to the hospital…’

So I checked it, but what really surprised me was there was a big difference in the two arms.

Then I laid in bed for twenty more minutes, and checked it again, and it was the same in both arms—approx 20 point difference.

I think I’m probably septic with either something that these meds aren’t covering (which is hard to imagine what I’m not covering), or (more likely), it’s a problem brewing from my compliance issues.

Meaning the antibiotics I have can fight whatever it is that’s bothering me, I just need to be super diligent about taking them.

In an ideal world, I should probably take my blood pressure machine to the ER, get admitted and have the super cool team that helped me last time work me up. I should probably maybe even take a day off of all of my antibiotics to try and get a positive blood culture (it’s hard to get a positive blood culture even before antibiotic therapy begins), so I can just to find out what this bug is,

but we don’t live in a perfect world because I have no desire to go to the ER today, no matter how deathly ill I’m feeling, until I’ve tried more of my options here at home.

So today’s attempt: super compliance.

(If I have to live at home with a bunch of pills and IV bags next to a clock to be compliant, then that’s what it takes.)

If in twenty four hours that doesn’t working, and there’s a super big different in my blood pressure,

Then I’m going to call my doctor and switch to IV Vancomycin. Try that for 3-4 days.

(Maybe this blood pressure problem is coming from something from my leg not healing right.)

Then in 3-4 days, if Vanco doesn’t work, then I’ll head to the ER cuz if none of the above work then I’m in super serious trouble 😢.

(There’s always a chance this could be fungal or something else really funky, but since I’ve walked down this path in the past I want to rule out the usual suspects first…)

Of course if it gets even worse over the next few days, then I’m headed straight to the ER. I probably should be going now anyway, but I prefer to avoid the hospital as much as possible…

(Left arm)

(Right arm)

My leg, still healing from the piece of skin taking out a month ago:

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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