My blood pressure is normal right now, 3:28am Sun Feb 25 — BP: left arm 106/66 (78) right arm 108/64 (79)

This is the most normal my blood pressure has been in days, which is a good thing.

I’ve been having some strange spasms in my lower leg near the scab, but I’m hoping those are spasms maybe I’ve always had, but I’m just noticing them now.

We patients tend to do that — notice things we otherwise usually ignore when something shitty starts to happen.

I’m also dripping a liter of saline super slowly again, which could also be helping my blood pressure, but either way I’m glad it’s at normal right now.

I dosed myself up with Cipro an hour ago, and IV Meropenam 2 hours ago.

For the first time in 13 years of continually being sick to one degree or another,

I’m actually keep track of *every* single medication I’m taking and the *exact* time I’m putting it into my body. And keeping notes on my blood pressure too. Admittedly, part of the reason I’ve always been so resistant to writing down every single detail was because then I’d have the evidence of exactly how bad of a patient I really am…but alas, the urgency of the current situation has forced me to keep accurate records so I can figure out exactly what’s working and what’s not, or look for patterns over time —

At this point, I guessing it’s the scab on my leg that’s causing most of my current problems.

Everyone I’ve surveyed today, old nurses I’ve known, etc, all said it wasn’t normal to look like this after being cut out over a month ago.

I really might need some IV Vanco…mostly likely some kind of staph infection that got through because the scab created an entry point…

Hopefully my blood pressure will continue to be normal, then I won’t need to switch antibiotics. I’m only gonna switch if it’s ying-yanging too much….

(Meaning if it’s still super low in the morning, then the current treatment regiment isn’t stabilizing me enough, and if I don’t hit this very hard and fast, I’ll create an even bigger problem.

If I had gone to the ER like I should have a few days ago, real doctors probably would have connected my leg scab with my blood pressure problems, but I guess I’m just stubborn that way sometimes….I really hate going to the hospital, especially when I’m really sick.

Looking normal and healthy when you’re actually really sick is a curse I wouldn’t wish on my worst enemy…

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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