BP 3:44am left arm: 101/69 (79) right arm 107/71 (83)

My blood pressure has been normal over the last twenty four hours. So the treatment course seems to be working, but I’m still very symptomatic. I keep reminding myself Rome wasn’t built in a day and I need to be patient. No one gets so sick their blood pressure falls into the 70s then bounces back right away. It’s going to take minimum a few weeks.

I really think these problems were caused by the scar on my leg and not the infection in my neck, which might be a good thing. If it was from my neck, I might have been in much more trouble because I’ve been battling that infection for two years now. I might not have been able to bounce back.

My leg near the scar hurts a little and my veins seem to be spasing a little too (is that even possible? I feel it though.) Hopefully that will go away soon.

(Is the spasming from being caused from the antibiotics working? I’ve been told my doctors I feel things most patients don’t feel. Perhaps that’s evolutions way of keeping us alive with this immune deficiency.)

Since I never get pain or redness or swelling or pus like a normal person, any kind of subtle change inside my body is a clue…it’s extremely difficult to figure out the source of an infection (and even diagnosing it as an infection), on my case it comes down to a lot of intuition and educated detective work.

I’ll run it by my infectious doctor when I see him in a few days, but I really think this time it’s the leg that did this to me…or is still doing it to me…I’m not completely out of the woods yet…

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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