My leg scab rubbed off into the bandaid. I think that’s progress. Bad pain in my jaw though. All da y.

My leg scab rubbed off into the bandaid—I think that’s progress (?)

Today I spent the whole day in bed with horrible jaw pain. At one point, I had to leave to see Noah’s Acadeca Coach, because I’m the main parent helping the team, and the entire time I was trying to talk with him, I just wanted to get home and back into bed the pain was so bad.

It’s the kind of pain all you want to do is sleep through it…it’s the only way to escape it. I never take pain killers, *ever*, because I like to save them for when I have surgeries (eventually you’ll become immune to pain killers if used all the time, plus they’re hard on your body),

but this pain in my jaw was so bad today, I almost cracked and thought about begging for a ‘script for some Oxy…that bad…

It finally has started to subside a little in the last hour, but it’s still bad. Maybe it’s bad because I’ve been very good about dosing myself up on my IVIg over the last two weeks, and maybe now my immune system is kicking in more and therefore it’s fighting whatever needs to be fought in my jaw and neck which is causing the pain?

Whatever it is, it hurts bad…

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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