No one understand how much I’ve suffered every fucking day for 13 years.

No one.

I’m about to write a long blog entry blasting the medical care I’ve received from UCLA, ripping apart their culture of arrogance and elitism over honoring the basic foundation of medicine — listening to a patient tell the story of what is happening to their body —

But this entry will probably make me enemies with half of the city of Los Angeles, but I have fucking had enough of them.

If they could spend a day living in my shoes, and feel what I feel, see what I see when I watch my son struggle through what should be ‘easy’ infections,

they would not be so crass and dismissive and trite when talking about negative test results.

They instead would be saying ‘where else can be look? What else can we do?’

If these fucking hypocrites really thought nothing was wrong with my son,

Then they would order him off of his daily antibiotics.

If they really fucking thought nothing was wrong with my son,

They would lecture me on the dangers of unnecessary use of antibiotics and therefore David Noah shouldn’t be taking them.

But they don’t.

Instead they do the chicken shit move — the coward’s move —

They keep him on daily antibiotics in the same breath they brag about all the high tech tests that came back normal.

It is the worst practice of medicine I’ve ever received or seen in my entire life.

Last week my blood pressure was all the way down to the 70s — the 70s! — I am running out of time.

I’ve done the best I can do, I’ve suffered every day for years, my son’s godfather has spent millions — MILLIONS — on my life over the last 15 years,

And there are actually doctors who say this isn’t that serious.

I don’t know what more they need.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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