Something I forgot to mention—I once had a positive blood test for IBS (IBS panel), the lab diagnose d Crohn’s, but clinically of course I don’t have Crohn’s

Dr. Kachru,

I don’t think I ever told you, but at Cedars I once did a IBS panel blood test, and the lab sent it back with a diagnosis of Crohn’s.

What’s particularly interesting, is that when you look at the breakdown of the blood tests, some of them were abnormal (IgE (?)

This test was done a few years ago, before I started IVIg on a regular basis. When I showed the results to one doctor (I can’t remember his name…somewhere on Wilshire), he was really fascinated by my results when clinically I don’t have the symptoms of Crohn’s, and I actually have the opposite problem — constipation.

He said there was something definitely usual going on with my results…I forgot about it, because I don’t have Crohn’s and he didn’t know what the results meant instead, but now that we’re trying to figure out what’s going on it might hold a clue.

I’m going for get a disc of my records from Cedars for Dr. Butte, it will be somewhere in those pages, but I’ll try and get just those results to send you as well.

Thanks again for everything.

Warmly,

Tara

(Noah is still very sick with his cold, it’s now been a week. He didn’t take his eye drops for a few days and his eyes are very glassy red again, so he jumped back on them today. Even though most of what he’s fighting is a virus, whatever is infecting eye is definitely bacterial.)

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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