I have squamous cell on my lip — maybe that lymph node in my neck isn’t so innocent (?)

It turns out I have Squamous cell, on the corner of my lip (I had many sun burns as a child), but now it’s making me think that the lymph node in my neck (which is on the same side as the cancer) might be related.

What’s worse, is that I’ve developed strange balance and weakness issues over the last few weeks (I even take a cane with me when I go places). I’m going to go see a neurologist to get another brain mri.

Today I’m going to see Dr. Teresa Soriano at UCLA to do the Moh’s surgery in a few hours, but given these new balance and weakness issues,

I’m wondering if I need to be admitted for a more thorough workup at UCLA.

(Dr. sherman is in Israel for a few weeks for vacation.)

I remember you warned me in your office many months ago that this lymph node might be dangerous…I just assumed it was connected to the infection.

What’s particularly interesting, is that Dr. Soriano was pretty convinced that the bump on my lip *wasnt* cancer when she looked at two weeks ago — I told her I was pretty sure that it was cancer, given my family history of cancer and my immune deficiency, but she was pretty sure it wasn’t.

I’m wondering now if the reason she didn’t think it was cancer, was because my bump didn’t look like a normal person bump who has cancer — remember that sliver I had in my toe back in June 2013, and my toe didn’t look like it had a sliver in it at all? (And the podiatrist said she had never seen anything like that in 20 years of practicing medicine?) I’m wondering if this is similar—

These new balance and weakness — symptoms I’ve *never* experienced before in my life — I really didn’t know what to make of them, I thought it might be MS related, but now I’m thinking it could be related to this Squamous cell problem—

Thanks for everything 🙂 Even if this is the worst case scenario, and this weakness and balance issues are brain mets, please always know how grateful I am for everything you’ve done for me and Noah. Please push anyone you can to get the answer for Noah, and watch out for him. Maybe I should go to the UCLA ER? I’ll talk with Dr. Soriano in a few hours—

I really appreciate everything—


About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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