Crap. My fasting cholesterol is over 300 😢. (Maybe it’s just a sign of how sick I am?)

I don’t really know what to make of this high cholesterol—I believe my cholesterol being so high is more of a sign of how sick I am, then actually a danger to my heart 🤔.

Uncle Bobby and I used to talk about this a lot—how Cholesterol was basically indicted at the scene of the crime, but isn’t actually a problem itself in the human body…cholesterol is more of a sign that the body is actively doing a lot of repair work, so it’s working overtime.

God knows I’ve felt the worst I’ve felt In years (maybe ever?) the last few months, with the new brain lesion that I think is also due to infection,

and if I’m right, then my body is really working overtime right now to try and fix itself…

Anyhow, I would never take Statin drugs anyway, because they’re too hard on the liver and I need to preserve whatever liver I have left to keep it working for the drugs that are definitely keeping me on the planet (mostly the IV antibiotics and the IVIg).

Still, a 300+ fasting cholesterol is definitely a warning flare going off—hello, there’s a problem, Houston 🤪—and trust me, I feel it every day—

(Someone needs to study cholesterol levels in septic patients—I would love to know what someone’s cholesterol is when they have a severe infection and compare it with their baseline cholesterol—maybe I’ll try to research to see if anyone has done this…right now I’m too busy researching my family tree, try to find any second cousins who may have this disorder as well…I’m pretty sure it’s a new mutation descendant from my great-grandmother Fanny Featherstone (1884-1942) who died of Leukemia, but I’m researching her siblings as well to see if any of them might have had this problem too (50/50 chance of inheritance to each kid, and some are looking like possibilities). Since I’m so ill right now, I’m trying to get this family tree finished before I die, to leave the information for Noah and his doctors…it will help if I can find someone alive who has this as well (unfortunately the main contenders die off), but if I can find someone else alive, then it would help genetic researchers narrow down the search a lot. Since it’s a new mutation, it’s probably being labeled as ‘unknown’ to be pathogenic, and unfortunately there are thousands of unknown mutation…narrowing down the field wouid help a lot—)

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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