Monthly Archives: January 2019

David Noah getting his blood drawn today :)

Noah had a lot of bloodwork to be drawn today. A lot of new tests as well, it will be interesting to see what the results are.

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Noah — this is a great case study about the importance of staying with doctors who understand your c ase as well as advocating for yourself, no matter what anyone says.

Noah, I just read this case study about a patient with a rare disorder, then ran into doctors who didn’t believe him… The doctor who writes this story even says “always listen to your patient”, but in our current ‘evidence … Continue reading

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Do happen to know if Noah and mine’s entire DNA sequence has been sequenced?

Ryan, I hope you’re doing well and life is going well for you ❤️. I was wondering if you happen to remember if CHOP sequenced our entire DNA, or if they just did the exome as well. Since we know … Continue reading

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