The change in my sweat just writing the email—

Just as I hit send, I got hit with another wave of sweat—it’s literally dripping off my face. Yesterday and today are the worst it’s been so far —

I’ve been through a lot over the years, and this period is turning out to be one of the worst. This fatigue is like nothing I’ve ever felt — yesterday Noah was home sick from school, and he spent most of the day getting medications for me, hanging medicine, bringing me food, etc. All I could do was force myself up to go to the bathroom, and that wasn’t easy….

My blood pressure is pretty low (92/56), but while I was feel crappy when my bp is in the low 90s, and I never felt this bad before —

If I thought they could do something for me in the hospital, I would be there that’s how bad this is, but I don’t think there’s anything that can be done for me there…I know I need some imaging studies, maybe that will give some answers (?) Or maybe I’ve gotten a weird virus? Or could this all be menopause? 🤔

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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