Blue Cross called me — I’m going to tell them that antibiotics are much cheaper than expensi ve MS drugs —

Blue Cross called me, can’t imagine they genuinely care about my current state of health…

I was going to ignore it (like I do most of my voice mails 🤪👍),

but instead I’m going to call back, and act like I believe they genuinely care about my well being,

and explain very clearly to them the pain and soreness I still feel in my neck — the rawness — and every single time I try and take a break from my antibiotics (and given my lack of compliance, I’ve taken a number of breaks…), it gets worse—that’s how I know it’s still the infection.

The problem with my case is that I’m always going to look healthy — I’m never going to have an elevated wcb, I’m never going to have a fever, and I’m always going to look healthy, no matter what is happening inside my body —

Which means the only way we know if I’m healthy or not is based on how I feel. If we’re lucky we can get a culture, but we’re not always that lucky.

(Or in this case, the potential for harm in getting another culture from my neck doesn’t justify doing it, because clinically it’s been the same pattern since I was diagnosed—we know what the problem is, I’m very familiar with the symptoms and the disease pattern, a new culture isn’t going to change anything—)

If my neck disease has mutated to the point it’s now resistant to my therapy, then that would also change my clinically presentation, which hasn’t changed yet—

(Though sort of hasn’t changed…the Vanco finally got rid of my night sweats, no idea what that was about. I had convinced myself it was most likely menopause, and only half heartedly thought infection, but now that the Vanco has gotten rid of them I think maybe I did have some kind of very deep infection…sweats weren’t very long enough (2 months?), and they also got worse as time progressed, and they got so bad I finally doing the Vanco regularly cuz I was literally drenched in sweat every night, it was getting scary, and now I they’re gone — I haven’t even had a single one today —)

Anyway — it’s probably something else, and like many things on my case, it won’t have a name but medical care finally made it go away 👍.

So I’m basically going to sweet talk bargain with Blue Cross: my neurologist is very worried about me, my Ms has been getting worse the last two years, she wants me to start very expensive MS drugs,

but I’m saying no because I’m still battling this infection, which will kill me faster…

It may not work, and I may have to go back down the rabbit hole again (neck surgery, culture, etc),

but I think it will help…

It took my old insurance Blue Shield a few years to figure it out,

but one day Blue Cross will realize they’ve hit the lottery of a sick patient and it’s just going to be expensive until I go onto Medicare one day…

(This is why I was really upset for awhile when my insurance changed, especially since I wasn’t even consulted, because I knew I was going to have to go through this again, but there’s nothing I can do about that, and I’m lucky to be alive, so that’s what’s most important 🙂

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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