Episode of severe chills on Sept 3 at 5am, then my CRP shot back up to 89 on Sept 4

I hope you’re doing well. ❤️

I had an episode of severe chills around 5am on September 3rd that lasted an hour or two, it was severe. The worst episode of chills I’ve ever had, I couldn’t even get up to get some Tylenol.

The chills started about 2 hours after I flushed the port in my right arm [which is 2 years old?] after not flushing it for a week, and I dosed myself with Invanz. This could be a coincidence.

I’ve had a very bad cough the last couple of days, and I’ve been nauseous. The two days leading up before the chills, I was vomiting at night.

I haven’t had an episode of chills since the September 3rd at 5am episode, and I haven’t flushed my port either.

I’m going to start keep track of every time I flush or use my port for Invanz and my symptoms, even though I’m not convinced there’s a connection, Noah mentions it.

I’m really not sure what’s going on, I feel awful. I’ve had autoimmune problems for years and my CRP has been normal. Why do elevated now?

I’m trying to lay low and rest a lot, it seems I get a little bit better then I get sick again, but this the worst. My cough isn’t as bad today, but it was really bad yesterday after my episode of chills.

Thanks again for everything. I have a phone appointment scheduled on the September 10th. ❤️

If there is any special bloodwork I should do next week, please let me know, otherwise I’d do the usual again in a few days, CRP, Sed Rate (which also shot to 70, but it hasn’t been normal in weeks), CBC and Chem Panel.

I will contribute to rest and try to keep my stomach still. I’ve been living on a lot of popsicles and Gatorade the last few weeks 🤪🤢.

I hope you’re doing ok. I miss you.


About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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