Family bonding time at the hospital

Some families bond over family dinner, some families bond over skiing vacations, or trips to a museum,

and my son David Noah and I bond over waiting rooms for appointments or various medical procedures 🤪👍.

Today we each did some bloodwork, I set up an appointment to have my port evaluated at the Procedure center, then we saw the doctor briefly about a bubble in his arm after the blood draw,

(I’m very grateful he squeezed us in)

and now we’re waiting for an outpatient X-ray because Noah might have scoliosis 🤔.

This is an average week in our lives, a part of our lives that normal people don’t understand (unless someone has a chronic illness themself),

I’ve learned to accept it’s almost impossible for people to understand what it’s like, the grueling nature of living with a chronic illness. It’s time consuming and mentally and emotionally and financially draining.

I’m grateful for modern medicine because it allows us to enjoy some part of life, but it’s like trying to get through life with a concrete slab on your back…people with chronic illnesses can’t quite get as much done as normal people…

This is exactly why we moved to where we did, to be close to the hospital, not because it was cool or fancy or hip…to be close so at least the commute time is minimal when you’re spending a lot of time going back and forth…

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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